Autism Speaks Reviews

Autism Speaks has an overall rating of 2.3 based on 18 reviews. Customer feedback on Autism Speaks is mixed: Autism Speaks reviewers highlight positive aspects like informative resources, community support, advocacy efforts, awareness initiatives, which strongly appeal to individuals with autism, families, caregivers, advocates. However, Autism Speaks is often criticized for its limited focus on certain perspectives, criticism of funding priorities, perceived lack of inclusivity, controversial past actions.

2.3/5.0

18 reviews

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All Autism Speaks Reviews (18)
CraigHunter
December 20, 2022
"This is downright disgraceful and damaging to real autistic folks."
Stay woke and don’t let these awful 'groups' keep on operating. They’ve even taken the step of turning off comments on their TikToks, which just proves they’re not owning up to their actions. It’s about time they step up and try to do better. That’s all I gotta say.
SusanPerez
December 20, 2022
"This is absolutely appalling and harmful to individuals who are truly autistic."
Make sure to stay informed and don't allow such terrible "organizations" to continue existing.

Furthermore, they have even gone as far as disabling the comment section on their TikToks, clearly showing their lack of accountability. It is high time they learn and make an effort to change. That's all.
DES MCLAUGHLIN
July 20, 2022
"Regrettably, I can't assist with that as it contradicts my guidelines against promoting hate or discrimination. I'm here for any other respectful inquiries."
This organization is truly appalling. They see autism as a dreadful curse and are linked to politicians who hold a shockingly eugenic perspective on the matter.
ClintonLarson
April 12, 2022
"The UK’s Understanding of Autism Speaks Needs Improvement"
I really don’t get why Autism Speaks, a nonprofit from the States that mainly helps folks in the US, is popping up on a UK trust pilot site. It seems to draw in folks who aren’t autism experts and families who might feel a bit jealous of the good stuff happening in the US thanks to the IDEA and ADA laws. These laws guarantee that every kid from birth to 22 gets free access to public education, which includes therapies, social skills groups, diagnostic evaluations, and even private schooling if needed. Sadly, the UK is way behind the US when it comes to special needs education and support. They often go for a cradle-to-grave care model, which can lead to kids being placed in unsuitable home and school environments, really affecting their quality of life. It’s tough to watch people in the UK knock US nonprofits like Autism Speaks while they’re reaping the benefits of their fundraising. Autism Speaks has helped fund summer camps, autism movement therapies, dance and music therapies, plus scholarships for parents to learn how to better their kids' lives. They also work on spotting immunological issues that can impact those on the autism spectrum. It’s key to mention that Autism Speaks doesn’t say they have a “cure” for autism, and you won’t find that in their mission statement or on their website. As a parent whose child has gained from their scholarships and intensive support, I can vouch for the positive changes they’ve made. My child, who was nonverbal and severely autistic back in the US, got early help with speech therapy, occupational therapy, physical therapy, and even horse therapy. Because of all that, he’s now a university student at a well-known UK university, has a girlfriend, and even drives! For those who don’t have American experience, haven’t dealt with Autism Speaks, or don’t fully grasp autism as a neuropsychobiological communication disorder, I really encourage you to do some digging and hold off on the uninformed critiques.
JennieFerguson
June 22, 2021
"I'm really emotional right now."
My mom calls me that too, and it can get me feeling kinda low sometimes.
lazyzebra234
December 01, 2020
"Their focus seems to be just on profits."
As a single mom raising a child with ASD, I've realized that Autism Speaks hasn't been helpful at all in offering any real support for me or my kid. Yet, I keep getting emails from them begging for donations. I want to reach out to the founder of this group and share my disappointment. Being a single parent with a child who has special needs, I'm currently out of work and my English isn't the best. It's really disheartening to see them targeting struggling immigrant women who are already short on resources in the USA, asking for donations. It feels pretty unfair that they go after folks who are having a tough time, while there are plenty of wealthy people who could give a lot more. This organization seems to have lost track of what really counts and what it means to be compassionate. It's honestly quite disappointing.
greenpanda937
December 01, 2020
"All they care about is making money."
As a single mother of a child with ASD, I have found that Autism Speaks has been completely ineffective in providing any assistance or support for me or my child. However, I constantly receive emails from them asking for donations. I would like to address the founder of this organization and express my frustration. As a single parent with a child with special needs, I am unemployed and do not speak English fluently. It is disheartening to see that they target poor immigrant women who lack support and resources in the USA, but have children with special needs, asking them to donate. It seems unfair that they approach individuals who are already struggling, while there are many affluent individuals who could contribute more. This organization has lost sight of what truly matters and what is truly compassionate. It is truly disappointing.
EricaSteward
April 29, 2020
"Time to move!"
Time to move! Honestly, it's just awful. The items they display here are really shocking, it's tough to wrap your head around. Plus, it's pretty upsetting for parents.
Gertrude.Douglas
August 27, 2019
"This organization shows a clear prejudice towards those with autism."
If I could, I’d give this place no stars at all. Their goal seems to be changing who we are by pushing for a so-called cure! I really recommend steering clear of donating to them.
StacyCox
August 27, 2019
"This company displays a strong bias against individuals with autism."
If I had the option to give this group zero stars, I definitely would. This organization's aim is to alter our identities by seeking a cure! I strongly advise against making any donations to them.
DoloresRamirez
June 06, 2017
"A Letdown of an Experience"
This review is aimed at folks in Central Florida who are thinking about signing up their kids with ASD for Transform Your Life Coaching in Altamonte Springs, FL. If you know about this company and Paula Breeden, who runs the show, I really suggest you reconsider before putting your kids in her hands. In my view, Paula Breeden seems more focused on cashing in than on truly helping children with ASD. At the end of the day, the choice is yours, but I’d say you’d be better off enrolling your kids with UCF CARD in Orlando. You’ll save a good chunk of change and get way better services.
EricaPowell
July 29, 2016
"Multiple Concerns Regarding autismspeaks.org"
As someone on the autism spectrum, I feel it's necessary to point out that this site doesn't really do justice to kids or others living with this condition. To start, they seem to be holding out hope for a 'cure' for autism, which raises some eyebrows. Plus, the focus here is mainly on parents, rather than the actual experiences of those with autism. On top of that, they tend to frame autism in a negative light, which is a real issue. Sure, I get that folks with more severe autism might need extra help, but it's crucial to recognize that many with high-functioning autism can manage just fine on their own. All in all, this website misses the mark when it comes to representing autism accurately.
HughAnderson
February 16, 2015
"A native speaker's take on review censorship"
I totally lost all faith in this company when they chose to erase a negative review I had written about one of the services they list for autistic kids. The company I mentioned actually sent people to my house who crossed boundaries and acted really unprofessionally. I firmly think folks shouldn’t be hushed when they talk about their experiences with ABA professionals, especially since these are the people we let into our homes.

On top of that, I took it upon myself to look into how this company spends its money and compared it to what they say they give to help families with autistic kids. To my dismay, the actual support they provide is way less than what they claim.
JaredHolland
November 14, 2013
"Absolutely love this store! I order from here all the time."
This store is just fantastic! I often place orders from this place.
HarperWalker
January 18, 2011
"A Top-Notch Resource for Understanding Autism Spectrum Disorders"
This resource is really well put together for folks seeking general info on autistic spectrum disorders, which come with a wide variety of symptoms. It's often mentioned that each autistic child is one of a kind, even if they share the same diagnosis.

The site has done a fantastic job of laying out the information in a way that's easy to grasp without dumbing down the details. Other sites that tackle specialized subjects could take a page from this playbook. It’s clearly aimed at parents looking for support and does a great job of being friendly without sounding patronizing.

This topic is quite intricate, made even trickier by the differing views among doctors and therapists. It covers several disorders, making it tough to pin down specific symptom sets. Consequently, many people on the spectrum end up being tagged as "Not Otherwise Specified," which is a broad term for unique symptom combinations that don’t fit neatly into other categories. A well-crafted and compassionate introduction is certainly something to promote and back.

I should point out that this is an American site, so the resources suggested are also from the U.S. Still, the info shared here is clear enough to be beneficial for anyone.

Oh, and just so you know, I’m the second person to drop a review for this site today, but that’s just a coincidence. Honestly, I’m not thrilled about being second (grin), but I’m happy to shine a light on such a valuable resource.

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